We are committed to helping every family with tyrosinemia
We are committed to helping every family with tyrosinemia
When a child is suspected or diagnosed with tyrosinemia, parents may feel confused and helpless.
Please stay calm, tyrosinemia is a treatable condition, and you can click the button below to learn more.
- We write blogs to organize the information learned from the literature.
- Doctors, parents, nutritionists, and scientists are welcome to share knowledge about tyrosinemia here.
- We are tracking the latest developments related to the treatment of tyrosinemia, including drug development and gene therapy.
- We also pay attention to the medical benefits policy.
- We invite families with tyrosinemia babies to share stories.
- The sharing will encourage more families of children with tyrosinemia.
- Liver transplantation is still the primary treatment for tyrosinemia type I in developing countries.
- We collect and share knowledge about pediatric liver transplantation.
- Knowledge and guidance for families with tyrosinemia to cope with COVID-19 infection.
- Sharing the experience of COVID-19 infection in families with tyrosinemia babies.
From Meiting Chen, 汉光药业 (CHINESE MEDICINES (GUANGZHOU) LTD.) (17-05-23)
Based on the experiences and information shared by the parents, it has been learned that KingMed Diagnostics can perform blood SA test (no interest or affiliation, more options are welcome).
Patients’ dried blood spot samples can be collected at their local hospital and then be sent to the company for testing. (Learn more: Button on the right)
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