About Us
My Story
I am a genetic engineer working in the UK .
When my baby was 8 months old, he was diagnosed with subacute tyrosinemia type I. During the process of understanding this disease, I was surprised to find that it's difficult to find a website specifically for tyrosinemia in Chinese language. So, we established a Chinese website called "酪宝宝之成长屋" ("The Growing House of Tyro Babies") in the hopes of helping every family affected by tyrosinemia.
As of 2023, our website has published over 60 blogs about tyrosinemia. However, I realized that more people worldwide need help, so I created this English version of "酪宝宝之成长屋" website. Over the past years, I have known a number of other tyrosinemia families in China, the UK, and the US. Even though it's a rare disease, I never realized the population was so large that it should be seen and documented.
An important action for helping people with orphan disease is sharing and helping each other. I build this website, hoping that the various knowledge and resources I have gained along the way can be accumulated and eventually help more people.
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