About Us
How much do you know about Tyrosinemia?
- We write blogs to organize the information learned from the literature.
- Doctors, parents, nutritionists, and scientists are welcome to share knowledge about tyrosinemia here.
News
- We are tracking the latest developments related to the treatment of tyrosinemia, including drug development and gene therapy.
- We also pay attention to the medical benefits policy.
Stories
- We invite families with tyrosinemia babies to share stories.
- The sharing will encourage more families of children with tyrosinemia.
Tyrosinemia Baby Kitchen
-Children with tyrosinemia who have not received a liver transplant need a low-protein diet plan
-We share our own recipes
Pediatric Liver Transplantation
- Liver transplantation is still the primary treatment for tyrosinemia type I in developing countries.
- We collect and share knowledge about pediatric liver transplantation.
COVID-19
- Knowledge and guidance for families with tyrosinemia to cope with COVID-19 infection.
- Sharing the experience of COVID-19 infection in families with tyrosinemia babies.